I had my 3 month PET scan (glorified CT scan) on Tuesday and saw my oncologist yesterday. She said there was no indication of any cancer cells on either my scan or my CA 127 blood test (cancer marker test). I believe the last time I had the CA 127, it was in the 20's, yesterday it was 11.7. That's great that it went down. They fluctuate and everyone has them. It's only a concern if they start to go up.
I have another follow-up in September and we'll determine then if I'm having more scans. Otherwise, the next scan will be in 6 months.
She told me to start taking the Estrogen blocker again which will cause bone & joint pain. I'll start to feel like I'm 80 again. She's worried that since I did have a slightly estrogen positive tumor the second time, that if we don't block it, it could come back again. I'll take it and add some glucosamine/chondrointin to my diet. Hopefully it will work.
She also said my other side effects should get better in time. Since the neropathy (tingling/numbness) in my fingers has stopped, that's a good sign that my feet/toes will stop eventually too. My hair is still falling out a little. She says this is post traumatic stress and it should subside in a few more months. I hope so or I'll be bald again! Actually, you'd never know it. Only I do since I know how thick my hair was and how thin it is now.
Oh well, moving forward and trying to live like it never happened. I'll be in Maine June 30th-July 20th. It will be nice to get out of this oppresive heat. It's over 100 here! Hopefully I can bring some warmth and sun to Maine!
Love,
E
Breast Cancer Survivor
"We cannot direct the wind but we can adjust the sails"
Family photo November 2008
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How it all began......
Welcome to my website! This site was created by my wonderful friend Angela to keep everyone I love updated on my “Journey” beating Breast Cancer.
I was diagnosed with Breast Cancer on December 19, 2007 @ 4:30 in the afternoon. It was quite possibly the worst phone call I’ve ever received. The doctors kept telling me that I was “too young”… it’s probably just a cyst or a fibroid (benign tumor). So, I had convinced myself of the same. Imagine my shock and fear when the doctor said “I hate to tell you this, but it IS cancer.”
I didn’t really know how to react. At first I cried a little. Then, I was ok. Then cried some more, then, ok. It wasn’t until I saw the surgeon and learned of the best option for survival, a double mastectomy, that I really broke down. I had a meltdown for a couple of days and then I was fine. I’ve been pretty good with it ever since. I know that I can beat this sneaky disease and I will live a long life with the loves of my life; my husband Jason, and my 2 boys, Will & Nathan.
Jason had a hard time at first. He just kept thinking the worst, that I wouldn’t make it. He’s doing much better now that we’ve seen all the doctors and the prognosis is good.
The kids don’t really understand. Will (who’s almost 4) thinks mommy is having an operation, that’s it. Nathan just turned 1 so he just wants to be held all the time. That will be the hardest thing on me. I love to hold my babies and I won’t be able to pick them up for awhile.
Thankfully, my mom, Kathy, has come to the rescue. She is here as long as we need her. I am truly blessed to have such a wonderful mother and family. My sister is coming from Alaska, pregnant and all, to help out too. My dad is coming back soon and Jason’s parents, Rick & Jan along with his whole extended family are just a phone call away if I need them. Unfortunately, my brother, Steve can’t come although he wants to. I even have my friends from Maine that want to come and help! Thank you Christina and Nikki for offering. My friends here, Angela, Oti, Julie & Niki are all on standby also. They’re ready at a moments notice for whatever we need. I love you all, I can’t say how good it makes me feel to be loved.
Everyone I know is praying for us which is so wonderful. I appreciate all the prayers. Only God knows what will happen but I’m confident that he will pull me through.
Anyway, I hope you log on to find out how we’re doing down here in Texas. My surgery is January 9th @ 7:30 a.m. I’ll be in the hospital for 2 nights.
I hope this site can help anyone else who gets this horrible disease, although I pray that none of you ever have to experience it.
Love to all!
Erica
I was diagnosed with Breast Cancer on December 19, 2007 @ 4:30 in the afternoon. It was quite possibly the worst phone call I’ve ever received. The doctors kept telling me that I was “too young”… it’s probably just a cyst or a fibroid (benign tumor). So, I had convinced myself of the same. Imagine my shock and fear when the doctor said “I hate to tell you this, but it IS cancer.”
I didn’t really know how to react. At first I cried a little. Then, I was ok. Then cried some more, then, ok. It wasn’t until I saw the surgeon and learned of the best option for survival, a double mastectomy, that I really broke down. I had a meltdown for a couple of days and then I was fine. I’ve been pretty good with it ever since. I know that I can beat this sneaky disease and I will live a long life with the loves of my life; my husband Jason, and my 2 boys, Will & Nathan.
Jason had a hard time at first. He just kept thinking the worst, that I wouldn’t make it. He’s doing much better now that we’ve seen all the doctors and the prognosis is good.
The kids don’t really understand. Will (who’s almost 4) thinks mommy is having an operation, that’s it. Nathan just turned 1 so he just wants to be held all the time. That will be the hardest thing on me. I love to hold my babies and I won’t be able to pick them up for awhile.
Thankfully, my mom, Kathy, has come to the rescue. She is here as long as we need her. I am truly blessed to have such a wonderful mother and family. My sister is coming from Alaska, pregnant and all, to help out too. My dad is coming back soon and Jason’s parents, Rick & Jan along with his whole extended family are just a phone call away if I need them. Unfortunately, my brother, Steve can’t come although he wants to. I even have my friends from Maine that want to come and help! Thank you Christina and Nikki for offering. My friends here, Angela, Oti, Julie & Niki are all on standby also. They’re ready at a moments notice for whatever we need. I love you all, I can’t say how good it makes me feel to be loved.
Everyone I know is praying for us which is so wonderful. I appreciate all the prayers. Only God knows what will happen but I’m confident that he will pull me through.
Anyway, I hope you log on to find out how we’re doing down here in Texas. My surgery is January 9th @ 7:30 a.m. I’ll be in the hospital for 2 nights.
I hope this site can help anyone else who gets this horrible disease, although I pray that none of you ever have to experience it.
Love to all!
Erica
1 comment:
Such good news Erica - hopefully I'll get to see you when you are home!
Hugs from Maine,
Katie
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